Everyone needs compassion
A love that's never failing, let mercy fall on me.
Well, everyone needs forgiveness
The kindness of a Saviour, the hope of nations
Saviour
He can move the mountains
For my God is Mighty To Save,
He is Mighty To Save
Forever, Author of salvation
Where he rose and conquered the grave
Jesus conquered the grave.
So, Take me as you find me
All my fears and failures
Fill my life again
I give my life to follow
Everything I believe in
now I surrender, I surrender
Shine Your Light And Let the whole world see
were singing, for the glory of the risen king...
JesusShine your light let the whole world see........
Hillsong-Australia
Leslie's Journey.....
Thank you for being a part of the journey.
Friday, June 12, 2009
Saturday, April 25, 2009
Dancing With God Invite
Who: All women, High School through "Golden Girls"
What: "Dancing With God"-- the fourth and final installment of a serial women's conference entitled "Sisters By Heart", which began in November of 2008.
When: Friday Night, May 1, 2009. 7pm to 10pm EDT.
Where: Oasis Christian Fellowship, 400 Enterprise Ave., Wauseon, OH
Cost: Free!
Program:
7:00 – Worship
7:35 – Laughter & Snacks
8:15 – Special Speaker: Tyson Aschliman
8:45 – Snacks and Q & A with Tyson
9:20 – Worship
What: "Dancing With God"-- the fourth and final installment of a serial women's conference entitled "Sisters By Heart", which began in November of 2008.
When: Friday Night, May 1, 2009. 7pm to 10pm EDT.
Where: Oasis Christian Fellowship, 400 Enterprise Ave., Wauseon, OH
Cost: Free!
Program:
7:00 – Worship
7:35 – Laughter & Snacks
8:15 – Special Speaker: Tyson Aschliman
8:45 – Snacks and Q & A with Tyson
9:20 – Worship
Wednesday, March 18, 2009
HAPPY BIRTHDAY LESLIE
Friends - please visit Tyson and TJ's blog started after Leslie went to be with Jesus.
Light a candle, say a prayer, post a comment. >> http://www.tysonaschliman.blogspot.com/
Blessings to each of you
Light a candle, say a prayer, post a comment. >> http://www.tysonaschliman.blogspot.com/
Blessings to each of you
Thursday, January 8, 2009
A Journey.....A Book
Reading Tyson's last blog made me think about words and what the meaning of journey really is. Webster Dictionary defines the word "journey" as
1. a traveling from one place to another, usually taking a rather long time; trip: a six-day journey across the desert.
2. a distance, course, or area traveled or suitable for traveling: a desert journey.
3. a period of travel: a week's journey.
4. passage or progress from one stage to another: the journey to success. –verb (used without object)
When I think of definition #4 I go back to the beginning of the "forleslie blog" and it's purpose. The intention was to call prayer warriors around the world to begin praying for Leslie, Tyson, TJ and their familes. We prayed for the surgeons, caregivers, safety as they traveled back and forth for treatments and appointments. We cried out to God for healing, peace, and understanding.
We watched the progress, we went from one stage to another and in the end or beginning ~ the journey took Leslie to heaven.... the journey of success.
"Well done good and faithful servant" Matthew 25:21
Tyson has been asked to share the story in the form of a book. Pray for him as he takes the words from the blogs and places them on paper. Going forward without Leslie has been hard,
going back won't be easy, but this is her minstry. ginny
1. a traveling from one place to another, usually taking a rather long time; trip: a six-day journey across the desert.
2. a distance, course, or area traveled or suitable for traveling: a desert journey.
3. a period of travel: a week's journey.
4. passage or progress from one stage to another: the journey to success. –verb (used without object)
When I think of definition #4 I go back to the beginning of the "forleslie blog" and it's purpose. The intention was to call prayer warriors around the world to begin praying for Leslie, Tyson, TJ and their familes. We prayed for the surgeons, caregivers, safety as they traveled back and forth for treatments and appointments. We cried out to God for healing, peace, and understanding.
We watched the progress, we went from one stage to another and in the end or beginning ~ the journey took Leslie to heaven.... the journey of success.
"Well done good and faithful servant" Matthew 25:21
Tyson has been asked to share the story in the form of a book. Pray for him as he takes the words from the blogs and places them on paper. Going forward without Leslie has been hard,
going back won't be easy, but this is her minstry. ginny
Sunday, November 30, 2008
Legacy
I don't mind if you've got something nice to say about me
And I enjoy an accolade like the rest
You could take my picture and hang it in a gallery
Of all who's who and so-n-so's that used to be the best
At such'n'such ... it wouldn't matter much
I won't lie, it feels alright to see your name in lights
We all need an 'Atta boy' or 'Atta girl'
But in the end I'd like to hang my hat on more besides
The temporary trappings of this world
I want to leave a legacy
How will they remember me?
Did I choose to love?
Did I point to You enough To make a mark on things?
I want to leave an offering
A child of mercy and grace who blessed your name unapologetically
And leave that kind of legacy
I don't have to look too far or too long awhile
To make a lengthly list of all that I enjoy
It's an accumulating trinket and a treasure pile
Where moth and rust, thieves and such will soon enough destroy
Not well traveled, not well read, not well-to-do or well bred
Just want to hear instead, "Well Done" good and faithful one...
Road time is my time to pray. Doing my run down of names and issues I thought of Leslie, Tyson and TJ. As I was finishing my prayer I turned on the radio and Nichole Nordeman's song came on and I thought of Leslie. I believe she left a legacy. ginny
And I enjoy an accolade like the rest
You could take my picture and hang it in a gallery
Of all who's who and so-n-so's that used to be the best
At such'n'such ... it wouldn't matter much
I won't lie, it feels alright to see your name in lights
We all need an 'Atta boy' or 'Atta girl'
But in the end I'd like to hang my hat on more besides
The temporary trappings of this world
I want to leave a legacy
How will they remember me?
Did I choose to love?
Did I point to You enough To make a mark on things?
I want to leave an offering
A child of mercy and grace who blessed your name unapologetically
And leave that kind of legacy
I don't have to look too far or too long awhile
To make a lengthly list of all that I enjoy
It's an accumulating trinket and a treasure pile
Where moth and rust, thieves and such will soon enough destroy
Not well traveled, not well read, not well-to-do or well bred
Just want to hear instead, "Well Done" good and faithful one...
Road time is my time to pray. Doing my run down of names and issues I thought of Leslie, Tyson and TJ. As I was finishing my prayer I turned on the radio and Nichole Nordeman's song came on and I thought of Leslie. I believe she left a legacy. ginny
Sunday, October 19, 2008
..... a year ago....
It has been a year since this particular blog was started. I check once a week to see how many new readers have joined the journey. I am so amazed and blessed as the numbers rise weekly. How can you read and not know there is a God?
Leslie continues to touch hearts around the world. She was truly blessed that there were so many people praying. As you continiue to read and share, keep their families and friends in your prayers they all miss her, even though they know she is in a much better place.
ginny
Leslie continues to touch hearts around the world. She was truly blessed that there were so many people praying. As you continiue to read and share, keep their families and friends in your prayers they all miss her, even though they know she is in a much better place.
ginny
Sunday, September 7, 2008
Third Service
At the Third Service last night in Bolingbrook, I think it was so nice to finally put a face to the names I have heard throughout the blog. Crosstowne Community Church family, thank you for everything you have done for Tyson, TJ, and Leslie. ginny
The last song last night was TJ & Leslie's favorite. Read the words and keep "Shining" .
Mighty To Save
Well, everyone needs compassion
A love that's never failing, let mercy fall on me.
Well, everyone needs forgiveness
The kindness of a Saviour, the hope of nations
Saviour
He can move the mountains
For my God is Mighty To Save, He is Mighty To Save
Forever, Author of salvation
Where he rose and conquered the grave
Jesus conquered the grave.
So, Take me as you find me
All my fears and failures
Fill my life again
I give my life to follow
Everything I believe in now I surrender, I surrender
Shine Your Light And Let the whole world see
were singing, for the glory of the risen king...Jesus
Shine your light let the whole world see........
Hillsong-Australia
The last song last night was TJ & Leslie's favorite. Read the words and keep "Shining" .
Mighty To Save
Well, everyone needs compassion
A love that's never failing, let mercy fall on me.
Well, everyone needs forgiveness
The kindness of a Saviour, the hope of nations
Saviour
He can move the mountains
For my God is Mighty To Save, He is Mighty To Save
Forever, Author of salvation
Where he rose and conquered the grave
Jesus conquered the grave.
So, Take me as you find me
All my fears and failures
Fill my life again
I give my life to follow
Everything I believe in now I surrender, I surrender
Shine Your Light And Let the whole world see
were singing, for the glory of the risen king...Jesus
Shine your light let the whole world see........
Hillsong-Australia
Monday, September 1, 2008
Second Service
In Better Hands - Natalie Grant
It's hard to stand on shifting sand
It's hard to shine in the shadows of the night
You can't be free if you don't reach for help
You cant love if you dont love yourself
There is hope when my faith runs out
Cause I'm in better hands now
It's like the sun is shining when the rain is pouring down
It's like my soul is flying though my feet are on the ground
So take this heart of mine there's no doubt
I'm in better hands now
I am strong all because of you
I stand in awe of every mountain that you move
Oh I am changed, yesterday is gone
I am safe from this moment on
There's no fear when the night comes 'round
I'm in better hands now
It's like the sun is shining when the rain is pouring down
It's like my soul is flying though my feet are on the ground
So take this heart of mine there's no doubt
I'm in better hands now
It's like the sun is shining when the rain is pouring down
It's like my soul is flying though my feet are on the ground
Its like the world is silent though I know it isnt true
Its like the breath of Jesus is right here in this room
So take this heart of mine there's no doubt
I'm in better hands now
I'm in better hands now
~~~~ This was sung at the Second Memorial Service by 2 young ladies that were friends of Leslie's. A beautiful song and it was a beautiful service. So many came and so many were blessed.
It's hard to stand on shifting sand
It's hard to shine in the shadows of the night
You can't be free if you don't reach for help
You cant love if you dont love yourself
There is hope when my faith runs out
Cause I'm in better hands now
It's like the sun is shining when the rain is pouring down
It's like my soul is flying though my feet are on the ground
So take this heart of mine there's no doubt
I'm in better hands now
I am strong all because of you
I stand in awe of every mountain that you move
Oh I am changed, yesterday is gone
I am safe from this moment on
There's no fear when the night comes 'round
I'm in better hands now
It's like the sun is shining when the rain is pouring down
It's like my soul is flying though my feet are on the ground
So take this heart of mine there's no doubt
I'm in better hands now
It's like the sun is shining when the rain is pouring down
It's like my soul is flying though my feet are on the ground
Its like the world is silent though I know it isnt true
Its like the breath of Jesus is right here in this room
So take this heart of mine there's no doubt
I'm in better hands now
I'm in better hands now
~~~~ This was sung at the Second Memorial Service by 2 young ladies that were friends of Leslie's. A beautiful song and it was a beautiful service. So many came and so many were blessed.
Friday, August 29, 2008
The Second Tree...
Be in prayer for those traveling and those preparing for the Second Tree service in Archbold on Saturday.
Saturday, August 23, 2008
First Tree
Please be in prayer for those traveling to and those preparing for the first memorial service.
May those in attendance be truly blessed by the message of celebrating eternal life.
ginny
May those in attendance be truly blessed by the message of celebrating eternal life.
ginny
Tuesday, August 5, 2008
Next Chapter(s)...
One week (and change) now, into the next part of the "journey". So much to say. Still learning so much every day. So many blessings. New burdens. So much I'd love to share. My heart is aching to write again...
In a proverbial "turning of the page", this blog is moving. Some people struggle with the MySpace thing... and I've got to admit, it's a little heavy on ad's and just plain shady stuff for my liking. And, I don't intend to make Ginny keep copying/pasting the way she has (thanks again, by the way, Ginny!)... So, here's where you can find "...another chapter"-- a blog on the life of Daddy and TJ after Leslie's victory over cancer. The URL is:
www.tysonaschliman.blogspot.com
Thanks again, everyone... and I truly hope to see you (virtually, or even better-- in reality) in "another chapter".
--Tyson
p.s. A housekeeping note-- To those of you interested, here is the Memorial Service schedule/plan for Leslie:
Each service will be an open-invitation event. There will be a short "service", which will include some worship and reflection time, and the reading of Leslie's favorite (children's) book, "The Tale of Three Trees". A must-read, for those of you who have kids. The services will start late-morning or early-afternoon, and will be followed by an outdoor reception. The reception will be held at each of the 3 locations, to dedicate a young oak tree in Leslie's memory. The oak tree is just a perfect image of Leslie-- strong, elegant, simple beauty. And 3 trees will do more for the life Leslie has left behind on earth than a single morbid grave site would. And plus... it plays in nicely with "The Tale of Three Trees" theme. Leslie knows/ knew that this would basically be the plan, and is/would be honored. So... here's the schedule. Times to be solidified as the dates near...
Saturday, August 23, 2008- Washington, IL. (Leslie's hometown. Dedication of the "first tree".)
Saturday, August 30, 2008- Archbold, OH. (My hometown. Yes, I know it's Memorial Day weekend. My apologies to any scheduling dilemmas this causes. Start time of the service will be 10a.m. EDT. Dedication of the "second tree".)
Saturday, September 6, 2008- Bolingbrook, IL. (Leslie's last earthly "home", and where her journey became a ministry-- where forever people will remember her and "think of God". Dedication of the "third tree".)
-----------------------
There is an educational trust fund for TJ being set up in Leslie's memory. Please contact me privately if you wish to honor her in that way. My email address is tyson_aschliman@yahoo.com. My home phone number is 630-312-8500.
I want to add that I almost didn't allow the trust fund to happen. I have been convinced by people wiser than me that this IS, after all, a good way for people who have been touched by Leslie to reach some sort of "closure", and offer a gesture that will make some significant long-term difference for her family. HOWEVER... I do want to say, that if you REALLY want to honor Leslie in a way that will REALLY make a difference in your OWN life, and in the lives of others, there is something else you can do... Take your significant other out for a nice dinner. Or a weekend get-away. Or a week on the beach. These are the things that Leslie longed to do over the last year of her life, but was never able to enjoy with me. The first surgery took her sense of taste and smell-- we never again were able to do our favorite thing for "date night". (Spend a whole lot of money on really, really good food and drink, at a unique and dimly-lit restaurant together.) Her health kept us from traveling. Nothing would honor Leslie more than for couples just to love on each other, spend time together, and bring happiness and wonder to their pallets (or sunshine to their faces), in her honor. Couples just don't do enough of that these days, if you'd ask me (or Leslie). If it makes you feel better, email me and tell me about the event. I'd love to hear about it!
Anyway... back to blogging at the new site. Thanks again!
In a proverbial "turning of the page", this blog is moving. Some people struggle with the MySpace thing... and I've got to admit, it's a little heavy on ad's and just plain shady stuff for my liking. And, I don't intend to make Ginny keep copying/pasting the way she has (thanks again, by the way, Ginny!)... So, here's where you can find "...another chapter"-- a blog on the life of Daddy and TJ after Leslie's victory over cancer. The URL is:
www.tysonaschliman.blogspot.com
Thanks again, everyone... and I truly hope to see you (virtually, or even better-- in reality) in "another chapter".
--Tyson
p.s. A housekeeping note-- To those of you interested, here is the Memorial Service schedule/plan for Leslie:
Each service will be an open-invitation event. There will be a short "service", which will include some worship and reflection time, and the reading of Leslie's favorite (children's) book, "The Tale of Three Trees". A must-read, for those of you who have kids. The services will start late-morning or early-afternoon, and will be followed by an outdoor reception. The reception will be held at each of the 3 locations, to dedicate a young oak tree in Leslie's memory. The oak tree is just a perfect image of Leslie-- strong, elegant, simple beauty. And 3 trees will do more for the life Leslie has left behind on earth than a single morbid grave site would. And plus... it plays in nicely with "The Tale of Three Trees" theme. Leslie knows/ knew that this would basically be the plan, and is/would be honored. So... here's the schedule. Times to be solidified as the dates near...
Saturday, August 23, 2008- Washington, IL. (Leslie's hometown. Dedication of the "first tree".)
Saturday, August 30, 2008- Archbold, OH. (My hometown. Yes, I know it's Memorial Day weekend. My apologies to any scheduling dilemmas this causes. Start time of the service will be 10a.m. EDT. Dedication of the "second tree".)
Saturday, September 6, 2008- Bolingbrook, IL. (Leslie's last earthly "home", and where her journey became a ministry-- where forever people will remember her and "think of God". Dedication of the "third tree".)
-----------------------
There is an educational trust fund for TJ being set up in Leslie's memory. Please contact me privately if you wish to honor her in that way. My email address is tyson_aschliman@yahoo.com. My home phone number is 630-312-8500.
I want to add that I almost didn't allow the trust fund to happen. I have been convinced by people wiser than me that this IS, after all, a good way for people who have been touched by Leslie to reach some sort of "closure", and offer a gesture that will make some significant long-term difference for her family. HOWEVER... I do want to say, that if you REALLY want to honor Leslie in a way that will REALLY make a difference in your OWN life, and in the lives of others, there is something else you can do... Take your significant other out for a nice dinner. Or a weekend get-away. Or a week on the beach. These are the things that Leslie longed to do over the last year of her life, but was never able to enjoy with me. The first surgery took her sense of taste and smell-- we never again were able to do our favorite thing for "date night". (Spend a whole lot of money on really, really good food and drink, at a unique and dimly-lit restaurant together.) Her health kept us from traveling. Nothing would honor Leslie more than for couples just to love on each other, spend time together, and bring happiness and wonder to their pallets (or sunshine to their faces), in her honor. Couples just don't do enough of that these days, if you'd ask me (or Leslie). If it makes you feel better, email me and tell me about the event. I'd love to hear about it!
Anyway... back to blogging at the new site. Thanks again!
My 3-year old pace car...
…..OOPs! Didn’t realize there was another epistle….
Monday, August 4, 2008
So I kind of expected to be basically paralyzed with grief for... I don't know... the next 7 years or so. It took me 7 years to learn to love her the way I do, so I figured it'd take that long to learn to live without her. Somehow it seemed the earth would stop turning, and the world would stop needing anything from me. You know... like a bereavement leave, or something.But on Sunday, July 27, I woke up and got out of bed. That's what people do. I took a shower. Shaved (I was long overdue... started a new shadow of stubble that had never known her face, and never would.) And I went to pick up TJ from Aunt Dana's house, where he had spent the previous week in innocent and gleeful oblivion. Poor kid has no idea what a big week that was for him.We went to the Zoo. It was as if nothing had changed-- at least to him, and in regards to our interaction. He was all into the animals and sights and sounds, as he always is. I was fighting tears of emotion-- not sadness-- as around every corner lay waiting another beautiful memory. The Brookfield Zoo has been a favorite place of ours since we moved up here. It was a perfect day at the zoo-- 80 degrees and not a cloud in the sky. Leslie just loved that kind of day, with a quiet glow about her. The memories as they flashed through my mind were so precious-- and there wasn't a single one where Leslie was being pushed in a wheelchair or needing her oxygen tank. She was young, strong, beautiful, and laughing. (And getting out the Purell after leaving the ape exhibit.)TJ didn't even ask. I don't know why he would have, in retrospect. Mommy not coming along with us on our little outings was nothing out of the ordinary over the past several months. To be sure, in his little not-yet-3-year-old world, nothing really changed for him, day-to-day. It had been quite some time since she was really able to do the "mommy" things that mommies are supposed to do. TJ (I hate to say it, because it just seems so unfair to Leslie) had already adjusted to life without his mommy. The only thing that changes for him is that now he can't go upstairs and kiss her goodnight before I put him to bed. But to be honest... to him, Mommy being in Heaven isn't really much different from Mommy being in the upstairs bedroom hooked up to IV's and an oxygen tank. (I don't need to say it... but for his Daddy, it's not as simple-- ah... another time, another blog...) Anyway, this whole "adjustment" of TJ's has been an ironic answer to prayer, really... God has already built that beautiful hedge of protection around his little heart.Anyway, I felt compelled to ease the news onto him over lunch at one of the outdoor Zoo restaurants over his "shark-dog" and juice box."Hey TJ, I need to tell you something." He looked up at me-- ketchup on his face, big brown eyes. I almost broke down crying right then and there. But I held it together. "Last night was a very special night. Last night, Mommy went to Heaven and she's with God now!""And JESUS?!" He asked. We'd prepared for this moment."Yup!" I laughed, still fighting tears. "And do you know what she's doing?""Is she getting my drum ready?" he asked, in reference to the stories Leslie and I used to tell him about heaven, as she grew sicker."YES! And someday we will all play BAND and worship God together! You, me, and Mommy!""Is she getting a cymbal too?" He was starting to get very excited."A GREAT BIG cymbal. LOTS of them!"His response was a glowing, dimply gasp of surprise/ excitement. He held his smile and looked at me for a while, and then re-focused on his shark-dog and juice box. And that was that.
From time to time, he asks when Mommy will come back. (He knows the answer, but it's an exercise that he needs to go through, I'm learning.) And at night we pray and thank God for Mommy, and tell Him to give her big hugs and kisses from us. There are times when he is quite "needy", asking simply for his paci and to cuddle with me. I know it is in those times that he is deeply missing her. But he doesn't say anything about her. Perhaps he doesn't even recognize it's the mommy-shaped void in his heart that is making him feel like that. Whatever the case... not only have I been shocked and thankful for how that little guy has been getting along this past week-plus-- he is actually the glue that's holding the pieces together for his daddy so far, as well. Not only has God answered Leslie's and my most gut-wrenching prayer of the last several weeks (to be with TJ, protect him, keep him "happy", and so-on), but God is indeed using TJ to be an ongoing answer to prayer in my own life, and in the lives of our families. (Something about "...faith like a child..." comes to mind.)Karen the homecare nurse came over Tuesday to pick up some infusion pumps and equipment that were no longer needed at 432 Butterfly Rd. I grabbed Jack (the Lab who is way too excited to hear the doorbell ring) and was pushing him into the basement when TJ answered the door."Why hello, TJ! How are YOU?" Karen always loved Leslie and TJ so well when she came over."NURSE KAREN!!" TJ answered, dancing a giddy gig. "Mommy's ALL BETTER!" He threw his hands up in the air and his face was lit up with the most amazing smile I've ever seen in my life. Karen just looked at me, not knowing whether to laugh or cry."Yes she is, TJ. Yes she is." Was all she could answer.Like I said. A daily answer to prayer.
I took him to a "Tubbies" (Cubbies) game, compliments of "Mimi's Friend Ginny" for an early birthday celebration. The game was actually at "Wrigley North" (Miller Park in Milwaukee-- a little baseball humor there). The Tubbies were playing the Bwoowers. We got there so early the gates had not opened yet, but the TGIFridays on the Left Field Terrace was opened, so we went there to watch batting practice and get some snacks for a bit. TJ was just in awe of the hugeness of the place. He's been to Wrigley already, (already in love with the place), but Miller Park is just so different. He was enthralled with the big yellow slide in left field that Bernie Brewer goes down when the Brewers hit a home-run. And he'd never been that close to the field grass and "baseball dirt" (warning track) before. (His favorite part about baseball is the dirt.) His eyes were just like saucers for the whole hour. Just before we got up to leave, I saw a ball jump off a Brewers bat from the batting cage at home plate, up into the hazy glare of the late-july Milwaukee sky. It looked like it might be coming our way...
*THUD* ... clank-clank.It hit the wall of the restaurant, directly behind where we were sitting. There was a mad scramble among the lookers-on-- half out of fear, trying to get out of the way, and half looking to find the ball, to be the lucky fan to take home a souvenir. I joined the fray. Just before I got up from the dining table where we were sitting, I looked down. The ball had settled right there between my feet. Right under my table. I hadn't even felt it land. I grabbed it and handed it to TJ. He was just amazed."TJ! A REAL BASEBALL! Just like the Cubbies play with!""Is it MINE?" he asked in wonder."Yup!""I can take it HOME with me?" He might as well have asked me to pinch him to see if he was dreaming."Yes! It's YOURS!""It's HARD!" He said. He's used to playing with kid-safe spongy baseballs in the basement.
After the exitement settled a little, the "why-game" started up. "Why did that Bwoower man hit the hard ball to me?" he asked."Well, I think that God made it land there... " I mused."Why?" he kept up his part of the game."Maybe it was kind of like a special gift from Mommy," I continued. "I think that Mommy wanted to be here with us, so she just asked God to make that ball land right between my feet, so you could take it home. She knew that would make you happy." I truly believed that was the right answer, not just a fairy tale to sell to a 2-year-old.He thought about it and then answered, "Or maybe that Bwoower man just saw me and hit it up to me."I laughed so hard. "Maybe it's a little bit of both of those things, buddy."We had a great time. The Cubbies won. We ate peanuts and ice cream and I even shared my Mountain Dew with him. (I know, I know... so sue me!) On the way home late that night, his tummy started hurting. I told him that it was probably from the pop that we drank."Pop can be very yummy, but you drank quite a bit of it, TJ. Too much pop can give you a tummy ache. That's why we don't have it very often. We only have it on very special days like Cubbies games.""Maybe next time I will only have one or two or three sips," he said, after thinking about it a bit. Smart kid, that one is. A little later, his tummy was still hurting, and I was trying to distract him, reaching back and holding his hand and trying to soothe him as I drove."Maybe we won't tell mommy that I had pop," he concluded. I could just feel her glare coming down through the night into the sunroof of my TrailBlazer. "What were you THINKING?" I could hear her say...We made it home. He felt better in the morning. And we headed to Ohio to be with Mimi and Papa (my mom and dad) for a few days. We'd been trying to make it over there for the past few months. But hospitals, doctor visits, and overall health kept us from getting there. We even missed the family vacation at the parents' place in Florida this year. That was crushing for all three of us. We'd been looking for a small window of opportunity to make the road trip down (flying was impossible, due to the state of Leslie's skull and sinuses after all her surgeries). That opportunity never materialized...Until now. TJ and I flew down together yesterday (thanks for the tickets and the free rent, Mimi and Papa!). The trip was very tiring, but now we're having a blast. It's so good just to be alone with him. He has been so sweet, so encouraging to me, and full of love and laughter.
Like I said... an answer to prayer. Every day a blessing.He's sleeping now-- one of his afternoon nap-a-thons-- which gives me some time to think. To breathe. To settle in and dig into this next chapter. I'm learning that God didn't intend for me to tackle all this at once. A man can only feel so much pain in a single sitting. There are only so many tears that can be shed before dehydration starts setting in. And He's given me this wonderful little pace car, (TJ), to keep me from burning out before I reach the finish line.
Posted by Tyson Aschliman at 12:38 PM 1
Monday, August 4, 2008
So I kind of expected to be basically paralyzed with grief for... I don't know... the next 7 years or so. It took me 7 years to learn to love her the way I do, so I figured it'd take that long to learn to live without her. Somehow it seemed the earth would stop turning, and the world would stop needing anything from me. You know... like a bereavement leave, or something.But on Sunday, July 27, I woke up and got out of bed. That's what people do. I took a shower. Shaved (I was long overdue... started a new shadow of stubble that had never known her face, and never would.) And I went to pick up TJ from Aunt Dana's house, where he had spent the previous week in innocent and gleeful oblivion. Poor kid has no idea what a big week that was for him.We went to the Zoo. It was as if nothing had changed-- at least to him, and in regards to our interaction. He was all into the animals and sights and sounds, as he always is. I was fighting tears of emotion-- not sadness-- as around every corner lay waiting another beautiful memory. The Brookfield Zoo has been a favorite place of ours since we moved up here. It was a perfect day at the zoo-- 80 degrees and not a cloud in the sky. Leslie just loved that kind of day, with a quiet glow about her. The memories as they flashed through my mind were so precious-- and there wasn't a single one where Leslie was being pushed in a wheelchair or needing her oxygen tank. She was young, strong, beautiful, and laughing. (And getting out the Purell after leaving the ape exhibit.)TJ didn't even ask. I don't know why he would have, in retrospect. Mommy not coming along with us on our little outings was nothing out of the ordinary over the past several months. To be sure, in his little not-yet-3-year-old world, nothing really changed for him, day-to-day. It had been quite some time since she was really able to do the "mommy" things that mommies are supposed to do. TJ (I hate to say it, because it just seems so unfair to Leslie) had already adjusted to life without his mommy. The only thing that changes for him is that now he can't go upstairs and kiss her goodnight before I put him to bed. But to be honest... to him, Mommy being in Heaven isn't really much different from Mommy being in the upstairs bedroom hooked up to IV's and an oxygen tank. (I don't need to say it... but for his Daddy, it's not as simple-- ah... another time, another blog...) Anyway, this whole "adjustment" of TJ's has been an ironic answer to prayer, really... God has already built that beautiful hedge of protection around his little heart.Anyway, I felt compelled to ease the news onto him over lunch at one of the outdoor Zoo restaurants over his "shark-dog" and juice box."Hey TJ, I need to tell you something." He looked up at me-- ketchup on his face, big brown eyes. I almost broke down crying right then and there. But I held it together. "Last night was a very special night. Last night, Mommy went to Heaven and she's with God now!""And JESUS?!" He asked. We'd prepared for this moment."Yup!" I laughed, still fighting tears. "And do you know what she's doing?""Is she getting my drum ready?" he asked, in reference to the stories Leslie and I used to tell him about heaven, as she grew sicker."YES! And someday we will all play BAND and worship God together! You, me, and Mommy!""Is she getting a cymbal too?" He was starting to get very excited."A GREAT BIG cymbal. LOTS of them!"His response was a glowing, dimply gasp of surprise/ excitement. He held his smile and looked at me for a while, and then re-focused on his shark-dog and juice box. And that was that.
From time to time, he asks when Mommy will come back. (He knows the answer, but it's an exercise that he needs to go through, I'm learning.) And at night we pray and thank God for Mommy, and tell Him to give her big hugs and kisses from us. There are times when he is quite "needy", asking simply for his paci and to cuddle with me. I know it is in those times that he is deeply missing her. But he doesn't say anything about her. Perhaps he doesn't even recognize it's the mommy-shaped void in his heart that is making him feel like that. Whatever the case... not only have I been shocked and thankful for how that little guy has been getting along this past week-plus-- he is actually the glue that's holding the pieces together for his daddy so far, as well. Not only has God answered Leslie's and my most gut-wrenching prayer of the last several weeks (to be with TJ, protect him, keep him "happy", and so-on), but God is indeed using TJ to be an ongoing answer to prayer in my own life, and in the lives of our families. (Something about "...faith like a child..." comes to mind.)Karen the homecare nurse came over Tuesday to pick up some infusion pumps and equipment that were no longer needed at 432 Butterfly Rd. I grabbed Jack (the Lab who is way too excited to hear the doorbell ring) and was pushing him into the basement when TJ answered the door."Why hello, TJ! How are YOU?" Karen always loved Leslie and TJ so well when she came over."NURSE KAREN!!" TJ answered, dancing a giddy gig. "Mommy's ALL BETTER!" He threw his hands up in the air and his face was lit up with the most amazing smile I've ever seen in my life. Karen just looked at me, not knowing whether to laugh or cry."Yes she is, TJ. Yes she is." Was all she could answer.Like I said. A daily answer to prayer.
I took him to a "Tubbies" (Cubbies) game, compliments of "Mimi's Friend Ginny" for an early birthday celebration. The game was actually at "Wrigley North" (Miller Park in Milwaukee-- a little baseball humor there). The Tubbies were playing the Bwoowers. We got there so early the gates had not opened yet, but the TGIFridays on the Left Field Terrace was opened, so we went there to watch batting practice and get some snacks for a bit. TJ was just in awe of the hugeness of the place. He's been to Wrigley already, (already in love with the place), but Miller Park is just so different. He was enthralled with the big yellow slide in left field that Bernie Brewer goes down when the Brewers hit a home-run. And he'd never been that close to the field grass and "baseball dirt" (warning track) before. (His favorite part about baseball is the dirt.) His eyes were just like saucers for the whole hour. Just before we got up to leave, I saw a ball jump off a Brewers bat from the batting cage at home plate, up into the hazy glare of the late-july Milwaukee sky. It looked like it might be coming our way...
*THUD* ... clank-clank.It hit the wall of the restaurant, directly behind where we were sitting. There was a mad scramble among the lookers-on-- half out of fear, trying to get out of the way, and half looking to find the ball, to be the lucky fan to take home a souvenir. I joined the fray. Just before I got up from the dining table where we were sitting, I looked down. The ball had settled right there between my feet. Right under my table. I hadn't even felt it land. I grabbed it and handed it to TJ. He was just amazed."TJ! A REAL BASEBALL! Just like the Cubbies play with!""Is it MINE?" he asked in wonder."Yup!""I can take it HOME with me?" He might as well have asked me to pinch him to see if he was dreaming."Yes! It's YOURS!""It's HARD!" He said. He's used to playing with kid-safe spongy baseballs in the basement.
After the exitement settled a little, the "why-game" started up. "Why did that Bwoower man hit the hard ball to me?" he asked."Well, I think that God made it land there... " I mused."Why?" he kept up his part of the game."Maybe it was kind of like a special gift from Mommy," I continued. "I think that Mommy wanted to be here with us, so she just asked God to make that ball land right between my feet, so you could take it home. She knew that would make you happy." I truly believed that was the right answer, not just a fairy tale to sell to a 2-year-old.He thought about it and then answered, "Or maybe that Bwoower man just saw me and hit it up to me."I laughed so hard. "Maybe it's a little bit of both of those things, buddy."We had a great time. The Cubbies won. We ate peanuts and ice cream and I even shared my Mountain Dew with him. (I know, I know... so sue me!) On the way home late that night, his tummy started hurting. I told him that it was probably from the pop that we drank."Pop can be very yummy, but you drank quite a bit of it, TJ. Too much pop can give you a tummy ache. That's why we don't have it very often. We only have it on very special days like Cubbies games.""Maybe next time I will only have one or two or three sips," he said, after thinking about it a bit. Smart kid, that one is. A little later, his tummy was still hurting, and I was trying to distract him, reaching back and holding his hand and trying to soothe him as I drove."Maybe we won't tell mommy that I had pop," he concluded. I could just feel her glare coming down through the night into the sunroof of my TrailBlazer. "What were you THINKING?" I could hear her say...We made it home. He felt better in the morning. And we headed to Ohio to be with Mimi and Papa (my mom and dad) for a few days. We'd been trying to make it over there for the past few months. But hospitals, doctor visits, and overall health kept us from getting there. We even missed the family vacation at the parents' place in Florida this year. That was crushing for all three of us. We'd been looking for a small window of opportunity to make the road trip down (flying was impossible, due to the state of Leslie's skull and sinuses after all her surgeries). That opportunity never materialized...Until now. TJ and I flew down together yesterday (thanks for the tickets and the free rent, Mimi and Papa!). The trip was very tiring, but now we're having a blast. It's so good just to be alone with him. He has been so sweet, so encouraging to me, and full of love and laughter.
Like I said... an answer to prayer. Every day a blessing.He's sleeping now-- one of his afternoon nap-a-thons-- which gives me some time to think. To breathe. To settle in and dig into this next chapter. I'm learning that God didn't intend for me to tackle all this at once. A man can only feel so much pain in a single sitting. There are only so many tears that can be shed before dehydration starts setting in. And He's given me this wonderful little pace car, (TJ), to keep me from burning out before I reach the finish line.
Posted by Tyson Aschliman at 12:38 PM 1
Sunday, July 27, 2008
Saturday, July 26, 2008
Leslie defeated cancer this evening at 9:15 CDT. She is now finally Home, having completed her "journey". There is no more suffering. No more gasping for air. No more fear. No more heartache. She is certainly worshiping before the Throne, catching up with some old friends and family that have gone before her, and certainly some new friends and family, tilting her head back with her eyes closed and laughing with that contagious laugh—the one her failing lungs have been preventing her from laughing over the past few months. I am so grateful that she is no longer suffering, but am thankful for the past several days and hours, when she continued to fight (she's a warrior!), which allowed for a prolonged time in which her family and I were able to say our proper farewells. (Mostly "I-love-you's", "thank-you's", and "see-you-soon's".) We passed along the farewells you all have sent along, and Leslie certainly knows she is loved. She breathed her last breath knowing it, and she knows it even more fully now.She was very aware that her time had come, in the days leading up to today. This week was a seamless transition from "fighting for her life", to "fear in knowing her body could not beat it this time", to "intense sorrow that these conversations would be her last", and finally, to "the perfect balance of 'will' and 'peace' we've all been praying for over the past 10 months". She dwelt in that place (praise Jesus!) of both fighting and drifting peacefully away for dozens of hours, basically unconscious through that time. The nurses just kept saying "she's SO BRAVE!", as she continued to "outlast" all of their/ our expectations. "She's a warrior," I'd say back.Today, her battle is over. And I know she is still with us in some real supernatural sense, pulling for us, fighting our portion of the war with us even now.And her story—her legacy, her LIFE—is just now beginning. It will continue to be lived in the lives of myself, our son, her family and friends, and you—our prayer warriors and partners on this journey—for generations to come. Until the war is won and we are all together to celebrate the victory before our King.I have decided, with the blessings of her family, to forgo a "traditional" funeral and burial. A "viewing", eulogy, internment, a room full of tears and flowers—these are all things that just couldn't do my Leslie justice. Be assured that there will be specific opportunities to celebrate and remember her life—"memorial celebrations" in multiple Midwestern locations—in the weeks or perhaps months to come. There IS a specific plan—something beautiful that God has laid on my heart—and logistical details will be posted on this site when they become final. But, I want TJ and me, and her family, to be able to participate and celebrate in those moments with you all—and it's just going to take a few days for us to settle into the next part of our journey, before we are physically able to do so. I do apologize to those who might feel more comfortable with a more traditional process, but please be assured, the memorial service(s) will allow for the opportunity to celebrate, grieve, reflect, and worship, just as a more traditional service would.I don't know if this is the "end" of this blog… And if it is, I don't know how to give it the proper "closure". This whole thing started back in October of 2007 as a "news center" of sorts for close friends and family who cared enough to keep themselves updated with the details of Leslie's battle, and the life we were living in its midst. As word began to spread, we noticed more hits and growing interest/ intrigue—which then seemed kind of weird to us, to be honest. "But hey," we said, "if someone's loving and interested enough in this to take the time to read, I guess there's nothing we're typing that we wouldn't want them to know or share in with us." Then… Ginny's mirror site on blogspot.com… Then various church prayer chains… And of course, the proverbial "grape-vine" via old school and church networks… And a very popular "Pray for Leslie" yard sign campaign in NE Indiana… Next thing you know, we were being lifted up in prayer by literally TENS OF THOUSANDS of people whom we had never even MET before. The miracle is that people were actually encouraged by her story… and then coming full-circle, WE were coming to these sites several times a day to glean some encouragement from the responses. Know that we have felt more loved, more supported, and more strengthened by God at the behest of your prayers and love than we could ever have imagined possible. Just last week, Leslie and I were talking about the "blog phenomenon", and I was basically asking if she was cool with "continuing", as the outcome was becoming more and more "intense", shall we say. Those that know her understand that she is actually a rather "private" person-- better in small intimate settings. For the most part, a woman of few, albeit well-thought-out, words. (We balanced each other well, that way.) But her response was this: "Maybe I should worry about how many people know so much about me and this journey. But people have been encouraged. Lives have been changed. God has been glorified. This is the purpose and life that God has set before me. I'm going to keep living it until I'm at the finish line." In fact, each of you, every time you have clicked on this blog to read-- to share in this journey... you have culminated the "ministry" that God had given Leslie over the past 10 months. Thank you all, for making it easier for her to see God working in/through this. Thank you.Thank you, close friends and family, for your physical support—a child-care fund for TJ, gift-cards for gas and groceries, hundreds of meals over the past 10 months, hugs, tears, physical presence and support around the house… I can't give you proper thanks here. For that matter, I'm not able to give you the proper thanks even through the course of the rest of my life. Just know I'm going to die trying. And finally, thank you, Father, for the precious gift of Leslie. Thank you for healing her—for the peace and joy she is now experiencing—as You have promised through history through Your Holy Spirit, for which You provided through the blood of Jesus. Thank you for the 32 years You gave us to enjoy being with Leslie. Take joy in her now. Wrap your arms around her. And as if Your love isn't enough… if she cares enough to take the time to let You… please touch her now, with "holy kisses", which can remind her from time to time of the persistent love that fills the hearts of those she left behind—these friends who have shared in her journey; her family; her precious little boy; and her husband. She taught us to love. She taught us to live. We are forever thankful for Your gift of life… and for the gift of Leslie.Amen.-Tyson
Saturday, July 26, 2008
In the Arms of God
After a hard battle with cancer Leslie Jo (Bucher) Aschliman went home to be with Jesus.
She was a wife, mother, daughter, sister, daughter-in-law, sister-in-law, aunt, cousin, grandchild, and friend. She will be greatly missed.
She was a wife, mother, daughter, sister, daughter-in-law, sister-in-law, aunt, cousin, grandchild, and friend. She will be greatly missed.
Thursday, July 24, 2008
beating cancer....
Last week, when I was having a better day, my pastor/friend Ronn sent me a wonderful essay written by the late Whitehouse Press Secretary and cable news commentator, Tony Snow, which was originally published in Christianity Today. (Fellow-non-conservatives in the crowd, just hang with me here.) This is totally worth the 10-minute read. Mr. Snow wrote this masterpiece on cancer, suffering, life, faith, and dying when he was deep in the midst of "The Valley of the Shadow of Death" in his journey and battle with cancer-- a battle Tony eventually won, but perhaps not in the manner for which most of his loved ones were hoping or praying. This morning, I'm finding encouragement in this article, which resonates more precisely and completely with Leslie's and my experience than just about anything else I've read. He finds words that I've been digging for, explaining the anxiety, the periodic sudden rushes of clarity/wisdom and strength, the blessing of "prayer warriors", and the meaning and goodness of life, as one can only experience when walking through the Valley of the Shadow of Death.
Here is a link to that article, which Mr. Snow wrote a few months before he finally beat cancer. (Tony "went Home" a couple of weeks ago.)
http://www.christianitytoday.com/ct/2007/july/25.30.html
(you might have to copy and paste)
No real update, medically. She had one bad "attack" again late last night, in which I had to convince the doctor and nurses (again, new to her case), that all she needed was 1mg of morphine, her dose of Ativan, and a little time. They were trying to convince me that intubation was the way to go. Finally, a senior resident popped in, heard what I was saying, and basically coerced the nurse into giving Leslie the shots. 10 minutes later, her heartbeat was steady, her O2 saturation was back to normal... I TOLD YOU SO!!! (sorry, had to get that out... didn't allow myself to say that to the nurse and doc). Anyway, she got through it and rested for the remainder of the evening rather soundly.
Her breathing is more strained than ever, over all, and now they're concerned about some kidney-related tests they've run, which they're looking into today. Her heart rate is holding steady at about 20 bpm higher than when she was admitted. I'm just rubbing her back, holding her hand, and being a whispering cheerleader in her ear now-and-then. She mostly communicates by nodding or shaking her head to yes-no questions. Every once in a while she strings together a few words, but it takes so much effort. Please pray for her comfort and peace.
Tyson
Here is a link to that article, which Mr. Snow wrote a few months before he finally beat cancer. (Tony "went Home" a couple of weeks ago.)
http://www.christianitytoday.com/ct/2007/july/25.30.html
(you might have to copy and paste)
No real update, medically. She had one bad "attack" again late last night, in which I had to convince the doctor and nurses (again, new to her case), that all she needed was 1mg of morphine, her dose of Ativan, and a little time. They were trying to convince me that intubation was the way to go. Finally, a senior resident popped in, heard what I was saying, and basically coerced the nurse into giving Leslie the shots. 10 minutes later, her heartbeat was steady, her O2 saturation was back to normal... I TOLD YOU SO!!! (sorry, had to get that out... didn't allow myself to say that to the nurse and doc). Anyway, she got through it and rested for the remainder of the evening rather soundly.
Her breathing is more strained than ever, over all, and now they're concerned about some kidney-related tests they've run, which they're looking into today. Her heart rate is holding steady at about 20 bpm higher than when she was admitted. I'm just rubbing her back, holding her hand, and being a whispering cheerleader in her ear now-and-then. She mostly communicates by nodding or shaking her head to yes-no questions. Every once in a while she strings together a few words, but it takes so much effort. Please pray for her comfort and peace.
Tyson
Wednesday, July 23, 2008
Sweet Home Loyola
Leslie had sufficiently stabilized by this afternoon, so they transported her to Loyola, where she can be among her docs and the staff that is familiar with her case. It's a different ICU, this time, so none of the nurses know us, which is a bit disappointing. It takes a while for a new staff to a) understand I'm not full of crap or being ridiculous when I make unusual requests and advocate on her behalf, and b) really get to know her, medically.
It has been a very emotional and difficult couple of days. The next couple will be as well, as we "wait and see" how her body reacts to the antibiotics, in the hopes that these severe difficulties breathing are merely a result of complications brought on by pneumonia, and not the dreaded advancement of her cancer. Crazy, but there's just no way to tell, other than how she feels in the coming days.
Needing prayers for peace, comfort, and wisdom to fall on us in abundance from the Almighty, more than anything else these next days. Thank you all. Your prayers are felt. Your love is reciprocated. Your support is gladly accepted.
-Tyson
It has been a very emotional and difficult couple of days. The next couple will be as well, as we "wait and see" how her body reacts to the antibiotics, in the hopes that these severe difficulties breathing are merely a result of complications brought on by pneumonia, and not the dreaded advancement of her cancer. Crazy, but there's just no way to tell, other than how she feels in the coming days.
Needing prayers for peace, comfort, and wisdom to fall on us in abundance from the Almighty, more than anything else these next days. Thank you all. Your prayers are felt. Your love is reciprocated. Your support is gladly accepted.
-Tyson
Tuesday, July 22, 2008
New ICU
Leslie is in the ICU at Bolingbrook/ Adventist Hospital, locally. They took her there via ambulance around midnight local time. I'm back at home now, (was on a work trip from Sunday night, planned through this evening), and her Mom and I are tag-teaming between TJ @ home and Leslie @ the hospital. Leslie needs your prayers. They currently are giving her as much oxygen through her face mask as they possibly can. The next step would be a ventilator. This terrifies me, of course. For the most part, Leslie rests now. She has had 3 "attacks" today, where she wakes up and is unable to breathe. It was in the middle of one of these last night about 2:30am that a doctor called me and basically asked if they had permission to put her on a ventilator. Leslie and I have not ever talked about this, and I'm kicking myself wondering how this as slipped my mind until now. (Call it avoidance, perhaps.) Fortunately, it was not necessary, as she soon "stabilized", shortly thereafter. The facilities are much more comfortable and quiet at Bolingbrook than at Loyola's ICU's, but we are eager to hear from the doctors here that she has stabilized enough to get her on a transport to Loyola, where the doctors and nurses know her case, and where we know the doctors and nurses. (The doctor here says it won't be until tomorrow at the earliest.) Anytime you introduce a new network of health professionals into a case with Leslie's kind of track record, there is much confusion, chaos, and frustration. Everybody here so far has been fine, kind, professional, etc... but we just want to get her on that transport to Loyola.I'm basically in shock here... We had a very nice Sunday before I left town. When I left, she was seeming so strong-- tired from a 3-hour trip wheeling around the mall and having lunch (THANK YOU GOD!)-- but strong and joyful. Now this... ...Needing prayers more than ever. (Haven't I said that several times already in the past???) Tyson
Calling All Prayer Warriors...
Asking for you to lift Leslie up in prayer. She was transported to the hospital in the wee hours of the morning.
Tyson is in route from being away on business. Pray for safety as he travels. Pray for TJ and their families.
Pray without ceasing
ginny
Tyson is in route from being away on business. Pray for safety as he travels. Pray for TJ and their families.
Pray without ceasing
ginny
Sunday, July 20, 2008
Lower Plateau
My day was pretty eventful-- even rather enjoyable, I feel guilty to admit-- taking care of Leslie, entertaining and directing TJ, playing house-keeper, etc... I'm pooped. (Do people say that anymore? We need to bring it back, I think...) But I was feeling pretty good about my efforts. TJ had a better day. (With all the action lately, his routine and general attitude and emotional fortitude basically went into the tank, but we've made some steps toward "recovery" this weekend.) Leslie got a lot more rest today, and even ate a bit. The house is in better shape than when I started this morning...But after I got TJ to bed (too late) tonight, the emotional flood-gates were opened. Leslie, now fully "awake" from her 2-week slumber, is really struggling with the spiritual/emotional side of this fight. Physically, there hasn't really been any improvement since we got her home. So weak. So tired. She's not any WORSE, really... just about good enough to keep her out of the hospital. It just seems like forever since she's felt anything resembling "normal". And it just gets her thinking, (to steal a movie quote from Jack Nicholson)... "What if this is as good as it gets?"She found herself listening to TJ and me interact downstairs today (she never made it out of the bedroom, again today), just missing us. We're still HERE, and she knows that... but she can't help but feel she's not "here" with us-- not able to do the mommy things she so longs to do. It's just too easy to find herself asking, "what if I never _______". So many blanks to fill in...So we had a "good cry" tonight, mixed in with prayers for healing, for peace, for comfort. We actually woke up TJ. Poor guy. He asked why mommy was "trying" (as verbal as the little guy is, he still has trouble with certain consonants) :). I tried to explain the best I could. "She was just really hoping she'd be able to go to Lifetime and Panera with us today... and it's been so long she's taken you to the zoo. It makes her sad that she doesn't feel well enough to do those things." He seemed to get that... still he asked, "But why is she trying?" (He's deep in the heart of the WHY stage these days.) (So is his daddy.) "She is crying because she is sad," I answered. "BUT... do you know what makes her HAPPY?" He seemed to be rather interested to hear my thoughts, behind his tired eyes and his paci, as we rocked. "YOU make her happy! Every time you're in her room, and give her kisses, and read books with her. And every time she hears you playing downstairs, it makes her happy." He shot me a very proud-- and tired-- grin, and went back to sleep.Tonight, our prayers are more along the lines of "How long, O Lord?" and "Take this cup". Oh, and God... protect and strengthen our little boy's heart. Let him be filled with Your love and Your strength, even now, as we've seen You do previously, throughout this journey along this road You've laid before us. Tyson
Thursday, July 17, 2008
She'sBack HOME!!!!
Joy comes easily today! We got home from the hospital JUST in time for lunch... and were welcomed by a surprised and very EXCITED almost-3-year-old. Mommy gets to rock and read to him before his nap, momentarily, and all is well with the universe, once again.So yeah... After several days of very little to no progress, she turned the proverbial corner pretty quickly and suddenly yesterday and last night, and she was feeling pretty "normal" this morning (whatever normal is, these days). Yesterday her appetite returned, and her body is apparently digesting what she's taking in pretty well. Her strength seems to have come back rather suddenly... She weighed in at 100lbs this morning-- first 3-digit day in several weeks-- which means that she gained almost 10 pounds since they admitted her late last week. She asked if her shorts made her look fat. (Just kidding!) And she's re-hydrated (probably the greatest source of the weight gain)... electrolytes looking good, and maintaining. So yeah... That sucked. But really, she just needed a little bit of a "re-charge".Funny story (kind of funny... or scary, maybe)-- The plan was to discharge her this morning just in time to get her to the Cancer Center for her "Week 3" infusion. I asked the on-service oncologist no fewer than 3 times... "Are you SURE? We don't get a week off or something???" But, Leslie would pipe in, "I've felt worse before than I do now, going into these-- might as well keep on schedule-- keep this thing going." (Again, visits 2 and 3 of each cycle have been pretty "easy", as far as the chemo infusions go. She hardly even feels them anymore.) So, we sat there, waiting in the Clinic lobby (as usual) to get her hooked up to her poison machine... when Dr. Clark walked by. He looked at us with a rather puzzled smile, excused himself from his party, and came over and pulled up a chair."What are you DOING here?" he asked."It's Thursday. Urbitux today..." Leslie answered."Well yeah, but... You just spent the last 5 days in the hospital. I'm not sure how I feel about this..."I piped in at this point, "That's what --I-- thought! But she's a warrior, and who am I to argue with her?"Dr. Clark laughed. "Let's just get you home and take a week to get some strength back. I'll talk to them and have them cancel you for today."We were both kind of relieved, I think, to hear him say it. The scary thing is, nobody even asked Dr. Clark HIS thoughts on getting her into her chemo infusion today-- they just "assumed"... He had no idea about the decision until he happened to notice us there waiting in the outpatient clinic. In FACT, he was just on his way over to the inpatient oncology unit (where Leslie had been) to pay her a quick visit. Yikes. Reminds me why I ask two or three times about EVERY little detail-- a personality quirk of mine that drives my wife NUTS, by the way. I guess in this case I should have asked the fourth time.Anyway, we'll meet again with Dr. Clark next week to determine where we "pick back up" with the treatment plan. For sure, she'll resume next Thursday, but we just don't know yet whether we'll stick with the calendar-- which would have her start back with the brutal "Week 1" treatments next week-- or if rather we'll just recommence where we left off, with the "Week 3" Urbitux infusion (thus, basically making this a "4-week" cycle, currently, with this being a "week off" of sorts). Dr. Clark will make his recommendation when we see him on Wednesday.In the meantime... **DEEP BREATH** **exhhhhhhhhale** Back to livin'! Just in time for a nice sunny (forecast) weekend! See some of you at church on Sunday!Thanks for praying us through this week! And... might I just say...HALLELUJAH!!!!! Tyson
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